Hello again.

It’s been a while.. Truth be told, I didn’t have the courage to pick back up the blog. I so desperately hoped we would have good news flowing once we left hospital and truth is, we haven’t. It’s tough. We’re exhausted, we’re torn, we keep trying to pick the pieces back up but just as

Black Out Days

It felt like this day was so far out of reach. We. Are. Home. We were waiting on the engraftment results on Wednesday – nail biting hours and days to see whether Cor’s transplant was taking. Wednesday afternoon, a doctor came through with the results telling us that Cor was in fact 100% engrafted and

Arcade

Not too much to update on at the moment. We’re still in hospital and just watching the bloods every day. Adriaan & I have Cor’s blood results printed every day and we have them saved in a little wallet. It’s crazy to see how much they have changed over the last few weeks, even crazier

Pity Party

It’s my birthday!! A different kind of birthday to what I would have normally planned but what a lovely birthday I have had. Adriaan dressed the room best he could (there is a bunch of restrictions of what we are and aren’t allowed in here). We’re playing cards and our favourite night nurse is on

Paralysed

Last night our ward had a medical emergency resulting in one of the families here leaving our ward. It rocked me more than I expected. The panic, the nurses and doctors flooding in to the ward and sense of our family community here shattering.. It hit home, this isn’t just a hospital stay. This is

Baby Mine

Things are so up and down in here, everything can change in literally an instant. Cor had an ‘okay’ kind of day yesterday but his bloods dropped and I went into a bit of a spiral. Just feeling like things could be so up and down for weeks and we just want to be home.

Overload

A day of little steps, literally. Cor did really well with his food yesterday. He managed a few spoonfuls of porridge, a yoghurt, fruit slices, some noodles, a big bowl of tomato soup and another yoghurt! We’re still really struggling with reintroducing milk to him. He’s refusing bottles and the breast – I have just

Show You The Light

Another early morning start as Cor is woken up for his morning bloods. I honestly can’t express how excited the thought of an uninterrupted nights sleep makes me. No waking him up, no disruption… Just a night where we can close our eyes and open them when we like! Yesterday was a day of some

Too Fast

Cor made a positive step forward today and ate 3 yoghurts!! This is huge for him as it’s a step closer to him eating again. He’s still not tried drinking milk from either me or a bottle and that’s the one I’m going to be super excited about… Once he realises that he can do

It’s OK

The days are long in here and it feels very much like Groundhog Day. Sorry for not updating yesterday, I was so tired that I just passed out as soon as I got Cor down. The difference a good nursing staff shift can make is insane though! We had a day of a bunch of